You bring up many good questions and it certainly seems that gluten intolerance has been playing a role in your health.
It is wise to find out if you have celiac disease or gluten sensitivity in order to educate your family about it. All too often gluten is insidiously and silently creating ill health with no one suspecting its role.
While you cannot do a traditional blood test since you’ve been gluten-free for so long, you certainly CAN do a genetic test. Genes will tell the tale as regards celiac vs. gluten sensitivity.
An easy and relatively inexpensive way to get it done is through Enterolab (enterolab.com). They are on-line and they will work with you directly.
They provide interpretation of the results but if you have any questions do feel free to contact me.
The test is a simple swab of the mouth so it is easy and painless.
Other tests that would be very important are testing for a leaky gut, cross reactive foods and hidden infections.
Your doctor is likely unfamiliar with these unless he or she is pretty cutting edge in this area.
It is critical for the gut to be fully healed, regardless if you have celiac or gluten sensitivity.
I would be happy to assist you in this arena as well. It is one of the reasons that we became a destination clinic – to assist those across the country and internationally who weren’t getting the help they needed.
As a final note, I would need to know a bit more specifics about the test that you take as regards IgA but unless it was for tTG, which is typically a blood test, I haven’t found that a positive IgA salivary test correlates as highly as you mentioned with celiac disease.
The genetic test will tell the tale.
To your good health,